Monthly Archives: June 2013

A Rocky Road of A1cs

I received my newest A1c result today. I’m happy with my progress. And so is my PCP (at my HMO, non-insulin dependent diabetics aren’t allowed to see Endos.  My guess is that this is a cost saving measure for the HMO).  In response to my lab results  my doctor sent me an email titled “Way to Go!”

Looking at my A1c history I can sum it by saying, “When I work the program it really does work for me!  And when I fall off the wagon I fall into a well on an abandoned property!”

I have become complacent in the past and that’s when the numbers go up and up and up. I know now to never turn my back on the sharp-toothed beast that is diabetes.

Name                    Hgb A1c %

Standard Range   4.6-6.0 %

11/15/2008                11.2

01/17/2009                 7.1

04/18/2009                 5.6

07/18/2009                 5.5

10/17/2009                 5.7

04/17/2010                 6.2

08/14/2010                 6.5

11/13/2010                 6.3

08/05/2011               10.1

12/19/2011                 7.7

07/07/2012                8.6

11/10/2012              10.8

01/05/2013               8.6

02/09/2013               8.0

06/15/2013               6.7

Dinner Versus Morning BG

On Thursday morning my fasting blood sugar was 111. That’s because during my brief visit to the Wednesday Night Farmers Market I had Indian Vegetable Curry (no rice and no Naan bread) instead of a sweet crepe (which would have been filled with lovely things that aren’t lovely for people with diabetes). Amazing how this works. My long term goal is to eat mostly moderate carb dinners, with an occasional planned cheat meal.

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At the Movies

Before diabetes I’d eat candy or ice cream at the movies. After diabetes entered my life I’d sneak low carb food into the theatre. This weekend I wanted to figure out a way to eat during the movie without resorting to bringing in outside food.

I decided to go with the lowest carb thing on the menu — the 100% beef hot dog. I had them take it out of the wrapper and put it in an open box and pour “nacho” cheese on it (I don’t want to know what was in the cheese! Maybe another day I’ll Goggle the ingredients!). I added green peppers from the relish bar, then I cut the hot dog into bite size pieces and ate them off the bun, which I used as a plate.

Two hours later when I checked my blood sugar I was pleased to see that it was 95.

Of course the best way to handle this would have been to eat a healthy before going to the movies.  Sometimes it works out that way, sometimes it doesn’t. I like having a Plan B.



The Road

“It’s a dangerous business, Frodo, going out your door,” he used to say. “You step into the Road, and if you don’t keep your feet, there’s no knowing where you might be swept off to.” – J.R.R. Tolkien, The Lord of The Rings

I’ve always been of two minds, the person who likes to curl up in an armchair with a good book while being warmed by a toasty fire in the hearth, and the adventurer who delights in treading new paths in a woodland far from home.

I’ve lived with a rare, chronic lymphoma (a cutaneous t-cell lymphoma, or CTCL) for the past fifteen years. After my diagnosis with this lymphoma  in 1998 I went online to join a support group and was stunned to find that none existed.  They weren’t kidding when they said this was a one in a million disease! It took me three months to find two other patients with my disease. Over time my little mailing loop because a group and eventually a list.  Because of my advocacy work (after seven years I got the Cutaneous Lymphoma Foundation to produce a pamphlet on my lymphoma), the Road has led me to a second home on the Internet where I run an international online support group, and to San Francisco, Seattle and Chicago (and other cities in the future) for patient education workshops.

CLF Logo


I’ve also lived with type 2 diabetes for the past five years.  And where has this too common, chronic disease taken me? To cyberspace and the world of blogging (no space boots required, but a guidebook written for non-techies would be helpful!).

While there are many T1D blogs to be educated and entertained by (there are far too many for me to even begin to list my favourite top 10), there doesn’t seem to be the same amount of T2D bloggers. Why is this? Is it the shame factor?  I’m not saying that every person with T2D feels this way, but I certainly do. When I tell someone that I have T2 I immediately wonder if they are looking at my overweight body and thinking, “So sad really, that she did this to herself.”

I may not impart any words of wisdom, but I promise to always be honest in my writings.