Category Archives: Type 2

The Road

“It’s a dangerous business, Frodo, going out your door,” he used to say. “You step into the Road, and if you don’t keep your feet, there’s no knowing where you might be swept off to.” – J.R.R. Tolkien, The Lord of The Rings

I’ve always been of two minds, the person who likes to curl up in an armchair with a good book while being warmed by a toasty fire in the hearth, and the adventurer who delights in treading new paths in a woodland far from home.

I’ve lived with a rare, chronic lymphoma (a cutaneous t-cell lymphoma, or CTCL) for the past fifteen years. After my diagnosis with this lymphoma  in 1998 I went online to join a support group and was stunned to find that none existed.  They weren’t kidding when they said this was a one in a million disease! It took me three months to find two other patients with my disease. Over time my little mailing loop because a group and eventually a list.  Because of my advocacy work (after seven years I got the Cutaneous Lymphoma Foundation to produce a pamphlet on my lymphoma), the Road has led me to a second home on the Internet where I run an international online support group, and to San Francisco, Seattle and Chicago (and other cities in the future) for patient education workshops.

CLF Logo

diabeteslogo

I’ve also lived with type 2 diabetes for the past five years.  And where has this too common, chronic disease taken me? To cyberspace and the world of blogging (no space boots required, but a guidebook written for non-techies would be helpful!).

While there are many T1D blogs to be educated and entertained by (there are far too many for me to even begin to list my favourite top 10), there doesn’t seem to be the same amount of T2D bloggers. Why is this? Is it the shame factor?  I’m not saying that every person with T2D feels this way, but I certainly do. When I tell someone that I have T2 I immediately wonder if they are looking at my overweight body and thinking, “So sad really, that she did this to herself.”

I may not impart any words of wisdom, but I promise to always be honest in my writings.